HOW TO GET INVOLVED WITH DEMENTIA RESEARCH
WHY GET INVOLVED WITH DEMENTIA RESEARCH?
Some Black, Asian and minority ethnic (BAME) communities are more at risk from dementia than the main White UK population but we need more research to understand this. About 15% of the population in the last UK Census described themselves as of BAME background but a majority of health and social care research projects have a very low percentage of BAME participants. Without more BAME participants it will take much longer to understand and reduce the increased risk to these communities. The Dementia Alliance for Culture and Ethnicity encourages and supports BAME communities becoming more involved in dementia research as well as emphasising the need for more co-production involving carers and those living with dementia at all stages of research.
DACE is frequently approached by researchers seeking contact with people from Black, Asian and minority ethnic communities to participate in research and this webpage is intended to help facilitate contacts between community organisations and research studies. Links to the page will also be disseminated through our social media. WE DO NOT POST PERSONAL CONTACT INFORMATION ON THIS PAGE
Are you a researcher who wants to contact carers or people living with dementia from Black, Asian and minority ethnic communities to participator in dementia research? Send us your contact details and supporting information on your research project to us at firstname.lastname@example.org and we will post it on this page and link to our social media platforms. If you have posters, send them in jpeg format. If you have your supporting information on a link to your website, send the website link
OCTOBER 2020 What can be done to make outdoor places easier for older people living with cognitive impairment (including people with young-onset dementia) Hertfordshire Business School
The researchers are particularly keen to hear from participants from BAME communities.
The research is a study of what can be done to make outdoor places easier for older people living with cognitive impairment (including people with young-onset dementia) and their family members of all ages to visit.
For more information
AUGUST 2020 Older People in Indian and Nepalese communities in Kent Surrey and Sussex & COVID-19
Brighton and Sussex Medical School
The project will focus on Indian and Nepalese communities in Kent, Surrey and Sussex to identify their health information needs on COVID-19
·(1) Indian or Nepalese community members speaking Hindi, Nepalese, or English, or all three, who would be willing to have a phone/video call with one of the research team to share their informational needs around COVID-19. Each interview will last between 45 minutes to 1 hour. Their insights will be greatly valuable. The interview will aim to address the information needs of the minority communities and use of health services.
·(2) healthcare professionals working within these communities
PARTICIPANT INFORMATION SHEET FOR HEALTHCARE PROFESSIONALS
PARTICIPANT INFORMATION SHEET FOR ELDERLY MINORITIES AND THEIR FAMILIES IN HINDI
PARTICIPANT INFORMATION SHEET FOR ELDERLY MINORITIES AND THEIR FAMILIES IN ENGLISH
PARTICIPANT INFORMATION SHEET FOR HERTFORDSHIRE PROJECT